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  • Being diagnosed with Lung Cancer has been the most devastating event of my life. Dr. Jacks, Laura & Jennifer made it bearable. They were amazing. But don't expect CCCN to willingly advise you to seek other opinions or go to an expert in LA or beyond, even if they cannot effectively treat you. I think $$ motivate this huge organization rather than your best health options. My father had lung cancer and was a patient here. When his chemo stopped working, they asked him if he wanted to continue or call hospice. They NEVER recommended he go elsewhere....KNOWING that USC, UCLA and City of Hope were ALL doing lung cancer trials. He died 3 years ago. I decided that was NOT going to be my fate. When my cancer metastasized, I wanted to go to LA for clinical trials. Dr Jacks thought it was a good idea, though she hadn't recommended it. CCCN then said they had a trial for me, after 4 long weeks it was determined I wasn't eligible and they wanted to put me back on Chemo instead, even though my genetic mutation report (which USC requested, not CCCN, but CCCN had copies of the report) clearly stated one of my mutations was resistant to 7 chemos including what they wanted to put me on. It was at that time I determined I was done with CCCN and went to USC. The trial they put me on was nivolumab. Now Opdivo and FDA approved. I go every 2 weeks to LA for treatment. I could get the treatment here, but no one has returned my phone call to address my grievances. If your cancer goes away with standard FDA approved treatment (like my mother's lymphoma did) CCCN is a good enough option for you. But anything above and beyond, I implore you to seek an expert in a nationally recognized cancer research center. http://www.cancer.gov/research/nci-role/cancer-centers/find My prayers are with you.
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