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| - My primary concern and complaint relates to the lack of communication by Mr. Parkinson (and possibly the office's medical assistants) while experiencing serious side effects from a medication that he prescribed. After seeing a new neurologist, it seems Mr. Parkinson also wasn't fully considering other possible major neurological conditions based on my symptoms.
The plan was to start me on one med and switch to another, if needed, after a couple weeks. At that time, I contacted the office to see if Mr. Parkinson would want me to switch to the other medication. However, I also wanted to discuss this other medication, as I'd researched it some and was concerned about how it might affect my mood and also, being a musician, whether it could have any hearing related side effects. I did not receive any response, I simply received a message from my pharmacy that a prescription was ready. I contacted the office again and was told by a med asst that Mr. Parkinson would get back to me by the end of the day. He didn't. So being, I started taking the Rx.
Immediately, I began experiencing "phantom scents." Thus, I contacted the office again, this time through the online patient portal, and I explicitly stated in the subject line I would like a response. In the message I brought up this side effect but also asked if Mr. Parkinson could address my previous concerns. I received a curt response that experiencing phantom scents is normal, nothing else responding to my original concerns.
After being on the Rx, Carbamazepine, for a week or so, my symptoms were still greater than they were on the first Rx. At this point, Mr Parkinson increased the dose from 200mg twice a day, to 400mg twice a day. After a day at the new dose, I developed a large, itchy rash on both arms with cracking skin. Looking up Carbamazepine on multiple websites, they all listed rashes with cracking and sloughing as a rare, but serious side effect, the type where you should contact your doctor immediately. I contacted the office. Mr Pakinson's response was that this was "not a known side effect" and to keep taking the medication. Not a known side effect, yet it's clearly listed as a rare but potential and serious side effect everywhere I've looked...
The medication also impacted my mood some, but the worst side effect began a few days later. I developed severe, pulsating/buzzing tinnitus in my right ear. It started off coming and going, but then became present at all times. I called the office and received no response. I sent in a message and received no response. I even followed up and asked if I should move my appointment up and come in sooner. I finally received a response to only that question, saying the appointment I already had scheduled was fine.
At this point, I stopped taking the Rx on my own, which, I know, is a bad idea, but I was out of options. Tinnitus lasted 2-3 weeks (was afraid it might be permanent). Thankfully, it has almost fully gone away now.
Saw my general physician, who's very disappointed in Mr. Parkinson's care and referred me to a new neuro (my referral to Brain and Spine was from Dr. Maulik Shah at Valley ENT). My new neurologist has confirmed this questionable care and lack of communication by Mr. Parkinson and the Brain and Spine Center.
With the medication side effects I began experiencing and lack of communication by Mr. Parkinson and/or the medical assistant staff at the office, I feel the care they provided was borderline negligent. In my summary above, I've also simplified, for sake of space and explanation, my attempts at contacting the office both by phone and online. Ignoring communication from a patient, especially one experiencing rare (I hope for other's sake they're rare) and major medication side effects, is inexcusable.
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